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14th HHT Patient and Family Conference

14th HHT Patient and Family Conference

Friday, September 26, 2008 at 11:00 AM - Sunday, September 28, 2008 at 1:00 PM (CT)

Chicago, IL

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Ticket Information
Ticket Type Sales End Price Fee Quantity
Member - Early Bird Ended $325.00 $0.00 N/A
Additional Family Members - Early Bird Ended $300.00 $0.00 N/A
Non-Members - Early Bird Ended $395.00 $0.00 N/A
Member - after 9/12/08 Ended $350.00 $0.00 N/A
Additional Family Members - after 9/12/08 Ended $325.00 $0.00 N/A
Non-Members - after 9/12/08 Ended $425.00 $0.00 N/A
Saturday Evening Dinner/Auction Only   more info Ended $75.00 $0.00 N/A
HHT Foundation Membership   more info Ended $55.00 $0.00 N/A
HHT Foundation GIFT Membership   more info Ended $55.00 $0.00 N/A
Scholarship Fund Donation   more info Ended N/A
Raffle Ticket   more info Ended N/A
Event Details

You will not want to miss one of the most comprehensive educational opportunities organized by the HHT Foundation!

 

If HHT (Osler-Weber-Rendu Syndrome) runs in your family, whether you were diagnosed decades ago or first diagnosed recently, this conference is for YOU! There have been significant treatment and management advances over time and it is crucial for your health and well-being to be informed of the latest recommendations.

 

The program of this national conference has been expanded to meet your needs and address the most important aspects of HHT including:

  • Most current information on HHT research, diagnosis, management, and treatment
  • Talk one-on-one with leaders in the field of HHT. There will be HHT physicians from every HHT Center of Excellence in North America, as well as leading experts in Europe.
  • Network with individuals and families affected by HHT
  • 60 workshops and presentations to choose from, including but not limited to: HHT Diagnosis, Treatment, and Management in Children; Management of Anemia; Medical Treatment of Nosebleeds in Adults and Children; Nosebleed Home Remedies; Genetics of HHT; Medical Insurance Issues and Benefits You are Entitled to by Law; Emotional and Psychological Aspects of Living with HHT.
  • The recently enacted Genetic Information Non-Discrimination Act (GINA) will be presented by the Acting Director of the National Human Genome Research Institute of the National Institutes of Health (NIH). This ground breaking law is important to everyone with a genetic disorder!

 

A special evening of dinner and a live/silent auction is planned for Saturday, September 27th. This is a time for good food, good friends, and fun!

 

We look forward to seeing you in Chicago . . .

When

Friday, September 26, 2008 at 11:00 AM
- to -
Sunday, September 28, 2008 at 1:00 PM (CT)

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Where
Hyatt Regency McCormick Place
2233 S. Martin Luther King Drive
Chicago, IL 60616


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Hosted By

HHT Foundation International, Inc.

HHT Foundation International is a worldwide, non-profit organization whose purpose is to support patients and families and educate medical professionals. We are dedicated to the individuals and medical professionals who encounter the daily challenges of managing Hereditary Hemorrhagic Telangiectasia (HHT) also known as Osler-Weber-Rendu Syndrome.
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